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Thank you! You have registered for the ELF Patient Organisation Day 2021. We look forward to seeing you on Thursday 2 September.
ELF Patient Organisation Networking Day 2021
This event focused on digital health will help patient organisations explore how they can take an active role in this changing environment
Date and time
Location
Online
About this event
With the COVID-19 pandemic helping to drive the adoption of digital healthcare solutions, patients and patient organisations have experienced both the benefits and limitations first-hand. What are the lessons learned? How can patient organisations play an active role in the next generation health and research?
Our event will include some inspiring speakers from both patient organisations and healthcare professionals to explore the benefits and challenges facing patient organisations as we look to share and learn from each other.
We do hope you will be able to join with us on 2 September 2021.
Programme outline
Please note time is shown in CEST (BST times are 1 hour earlier)
10:30 Kjeld Hansen, ELF Chair: Welcome and opening overview of topic
10:50 Keynote speaker: Professor Anita Simonds, ERS President: “Where are we now? Learnings from the ERS Presidential Summit 2021 on Digital respiratory medicine – realism v futurism”
11:05 Keynote speaker: Mr Pascal Lardier, Vice-President - International Events & Media Content, HIMSS: "Next generation health and care models: What role for patients and patient organisations?"
11:20 Q&A
11: 30 Break
11:45 Keynote speaker: Valeria Ramiconi, Programme Manager, EFA (The European Federation of Allergy and Airways Disease Patients' Associations): "The Asthma and COPD Patient's Digital Journey"
12:00 Sandra Karabatić, President of Jedra and Andreja Šajnić, MSN RN, Dept for Respiratory Diseases Jordanovac, UHC Zagreb, Croatia and member of Croatian association for lung cancer patients Jedra: "Improving communication and providing patient support during the COVID-19 pandemic and earthquake in Zagreb "
12:10 Elise Lammertyn, Head of Research, CF Europe: "Enhancing Real World Data in cystic fibrosis: supporting our member patient organisations"
12:20 Mindy Buchanan, Director of Patient Programs, Foundation for Sarcoidosis Research, USA: "Sharing our strategy to support communities digitally in promoting mental health and wellbeing"
12:30 Lucy Dixon, PCD Support UK: "Our experience of NHS Spirometry at home and how we are adapting to digital communication"
12:40 Q&A
13:00 Break
13:45 Breakout discussion groups
14:45 Plenary session: feedback from discussions
15:15 Break
15:30 Professor Marc Humbert, ERS President Elect
15:40 Kjeld Hansen, ELF Chair, Closing comments
15:45 Goodbye and end of event